Donation Account: IBAN AT656000000510045254, BIC BAWAATWW, EB-CLINET, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now
  • Welcome at EB-CLINET!

    EB-CLINET is a clinical network of EB centres and experts, which aims at establishing EB centres worldwide to improve medical care for people with EB through exchange of knowledge and experience about EB and, by providing a basis for clinical trials, to accelerate the way to a cure for this disease.

    Survey EB clinical practise guidelines

    Have your say on EB clinical practice guidelines

    Clinical Practice Guidelines (CPGs) for EB


    They guide medical professionals as they care for people with EB as well as patients in their involvement in their own care. CPGs are designed to help ensure that clinical care is guided by evidence gained from science and by expert opinion.

    Save the Date 3rd EB-CLINET Conference

    3rd Conference of EB-CLINET

    In 2015 the EB-CLINET and DEBRA International conferences were held at the same time and shared one day of the programme. With over 320 delegates from over 35 countries attending one or more days of the conferences, this exceptional event exceeded expectations. Read more

    EB-CLINET Interactive Maps

    Interactive Maps

    These maps give a general overview about the location of different services related to EB.
    Contact details, level of expertise in EB and information about services can be found with one click.

  • Contact Information

    www.eb-clinet.org

    Academy EB House Austria
    Gabriela Pohla-Gubo, PhD
    +43 (0) 5 7255-24638
    office(at)eb-clinet.org

    How to become an EB-CLINET partner:
    To join the network, it is necessary to fill in the questionnaire which can be requested via email here: office(at)eb-clinet.org

    Events

    • 26-28 May 2016, Edinburgh (UK)

      ECRD 2016: The European Conference on Rare Diseases and Orphan Products

      22-25 September 2016, Zagreb (HR)

      DEBRA International Congress 2016

  • Alternativtext zu dem Bild

    DEBRA Austria

  • Logo of the EB House Austria

     

     

    EB House Austria

    The EB House Austria, located in Salzburg, is open to all individuals with EB as well as to their families and provides state of the art medical treatment.

  • Alternativtext

    DEBRA International

    DEBRA International is a worldwide network of national groups working on behalf of those affected by EB. See information about appropriate medical care and research into EB as well as links to the national DEBRA groups around the world.