Donation Account: IBAN AT656000000510045254, BIC BAWAATWW, EB-CLINET, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Clinical Practice Guidelines (CPGs) for EB

EB-CLINET supports DEBRA International in undertaking a long-term initiative to develop clinical practice guidelines (CPGs) for EB.

CPGs are guidelines which provide recommendations for clinical care. They are based on evidence gained from medical science and, when no evidence exists, on expert opinion.

DEBRA Internationals mission is to produce guidelines for all the major clinical areas involved in the care of people with EB. These guidelines will help to improve the clinical and social care of EB patients across the globe. Until there is a cure, there is probably no greater way to positively impact the lives of people with EB.

DEBRA International is one of the few patient organisations in the world leading the development of clinical practice guidelines.
These clinical guidelines are for patients as well as healthcare professionals. If however, you are looking for advice that is more focused on daily life with EB, we recommend that you have a look at the EB Handbook.