Donation Account: IBAN AT656000000510045254, BIC BAWAATWW, EB-CLINET, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Recent Developments


Report: EB Clinical Practice Guideline Project


A scoping project was undertaken during the period Feb-July 2016, in order to assess the needs of the initiative and to make recommendations for future steps. The project far exceeded its initial goals and, over its course, considerable steps were taken to progress and strengthen plans for many guidelines in varied aspects of EB clinical care.

A summary of the outcomes and recommendations of the scoping project can be read here.