Donation Account: IBAN AT656000000510045254, BIC BAWAATWW, EB-CLINET, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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EB2020: 1st Global Congress on Epidermolysis Bullosa

19 - 23 January 2020
Where: Park Plaza London Riverbank, 18 Albert Embankment, Lambeth, London, SE1 7TJ

In 2020, the EB2020 Research Conference, the 5th Conference of EB-CLINET as well as the DEBRA International congress will be held together as the '1st Global Congress on Epidermolysis Bullosa'

The registration is now open.

Early bird discount is available till 31 May 2019.
Please visit the congress website for registration and regular updates.

To book your accommodation at the congress hotel please visit As an EB 2020 congress attendee, you will receive access to a negotiated rate for your stay.

About EB World Congress

EB World Congress is an independent, global congress on epidermolysis bullosa (EB) bringing together the world's leading experts in EB research, clinical management, and the EB Community.

This pooling of state-of-the-art knowledge across the key stakeholders not only gives guidance to the professionals involved in EB, but also helps in the development of strategies for the research, regulatory, funding, and healthcare communities.

Fostering strategic and collaborative work with emphasis on current scientific and clinical data, this meeting makes a difference in the world of EB and helps raise awareness of the condition.

The inaugural event is being organised by DEBRA UK and supported by an alliance of more than 20 rare disease and dermatology organisations worldwide.

Please visit for more information.

About 2020

EB 2020 is the first event for EB World Congress, which brings together world opinion leaders, academics, practitioners, and patient representatives to share state-of-the-art knowledge on EB.

Organised by DEBRA UK and supported by an alliance of more than 20 rare disease and dermatology organisations worldwide, this inaugural event is the first time that such a comprehensive gathering will come together, making a difference in the world of EB.

  • Scientific Committee

    Johann Bauer, Austria
    Leena Bruckner-Tuderman, Germany
    Jo-David Fine, USA
    Cristina Has, Germany
    Alain Hovnanian, France
    Fernando Larcher, Spain
    Peter Marinkovich, USA
    John McGrath, UK
    Dee Dee Murrell, Australia
    Francis Palisson, Chile
    Andy South, UK
    Katsuto Tamai, Japan
    Jakub Tolar, USA
    Giovanna Zambruno, Italy

  • EB-CLINET Programme Committee

    Marieke Bolling, Netherlands
    Anna Bruckner, USA
    Hana Buckova, Czech Republic
    Anja Diem, Austria
    Ignacia Fuentes, Chile
    Christina Has, Germany
    Ravi Hiremagalore, India
    Mark Koh, Singapore
    Martin Laimer, Austria
    Anna Martinez, UK
    Hagen Ott, Germany
    Agnes Schwieger-Briel, Switzerland
    Andy South, USA
    Eli Sprecher, Israel

Global EB Alliance

  • Congress organiser

  • Alliance members

    Logo Eurordis
    Logo LifeArc

  • Logo Fondation René Touraine
    Logo British Skin Foundation
    Logo Experimental Dermatology

  • Logo Genetic Disorders UK
    Logo Healx
    Logo Society for Investigative Dermatology