DEBRA International is currently very active in the development of further guidelines. Almost 300 volunteers, EB healthcare professionals, as well as people living with EB, are working hard, to create these tools for better treatment of EB. Patient versions of some of the guidelines are also planned.
Currently, the following guidelines are in development and are planned to be published in 2021:
Pregnancy/childbirth/aftercare
Hand surgery and rehabilitation
Management of anaemia
Expert panels are already working on these further guidelines which should be published later:
Neonatal care
Enteral and parenteral feeding
Palliative care
Transition
Complementary, Alternative, and Integrated Medicine
