Doctors and nurses discussing while sitting around a table with documents in front of them

Welcome at EB Clinet

EB Clinet is an international platform that ensures the best possible patient care and enables innovation by connecting health care professionals who work with EB, sharing and retaining EB expertise, and promoting collaboration and development.

About the initiative EB Clinet Contacts

Child with EB with dressings on hands and arms sitting in front of a care taker

Clinical Practice Guidelines (CPGs) for EB

CPGs give recommendations for clinical care of EB patients, based on evidence gained from medical science and expert opinion.

More about CPGs

World map with blue, green and orange pins and purple circles marking the location of EB-CLINET partners

Map of EB Clinet Contacts

Our maps give an overview of the location of different services related with EB, including contact details and services provided.

View the map

Community for nurses

Nursing Forum for EB Care

This forum supports nurses caring for people living with EB by providing an easily accessible platform for the exchange of questions, knowledge and experiences.

Find out more

Upcoming events & training

See all events

People in Circle holding their Hands Together in the middle, view from the top

Joining the EB Clinet network

To date, our network for health care professionals working in the field of EB already counts more than 115 clinical contacts in 55 countries worldwide. Do you want to become a part of the EB Clinet initiative?