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Welcome at EB-CLINET

Our clinical network of EB centres and experts aims to improve medical care for people with EB and to accelerate the way to a cure through connecting health care professionals working with EB for the purpose of exchange of knowledge and experience.

About the initiative EB-CLINET Partners

Information and recommendations for EB patients, caregivers and health care professionals regarding the current coronavirus outbreak.

Read more about COVID-19 & EB

Our maps give an overview of the location of different services related with EB, including contact details and services provided.

View the partner map
Community for nurses

Nursing Forum for EB Care

This forum supports nurses caring for people living with EB by providing an easily accessible platform for the exchange of questions, knowledge and experiences.

Find out more
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