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Welcome at EB Clinet

EB Clinet is an international platform that ensures the best possible patient care and enables innovation by connecting health care professionals who work with EB, sharing and retaining EB expertise, and promoting collaboration and development.

About the initiative EB Clinet Contacts

On 17-18 October 2024, health professionals from all over the world will meet in Vienna to exchange information on the latest developments in EB treatment.

Details & registration

On 4 April 2024 at 12 noon UTC, Dr Anna Martinez and her co-presenters will review the physiological aspects of puberty in EB and share knowledge & practices that facilitate appropriate individualised support for adolescents and emerging adults; before, during and after transition.

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Community for nurses

Nursing Forum for EB Care

This forum supports nurses caring for people living with EB by providing an easily accessible platform for the exchange of questions, knowledge and experiences.

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To date, our network for health care professionals working in the field of EB already counts more than 115 clinical contacts in 55 countries worldwide. Do you want to become a part of the EB Clinet initiative?

Join EB Clinet now!
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