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Welcome at EB-CLINET

Our clinical network of EB centres and experts aims to improve medical care for people with EB and to accelerate the way to a cure through connecting health care professionals working with EB for the purpose of exchange of knowledge and experience.

About the initiative EB-CLINET Partners

Our maps give an overview of the location of different services related with EB, including contact details and services provided.

View the partner map

CPGs give recommendations for clinical care of EB patients, based on evidence gained from medical science and expert opinion.

More about CPGs
Community for nurses

Nursing Forum for EB Care

This forum supports nurses caring for people living with EB by providing an easily accessible platform for the exchange of questions, knowledge and experiences.

Find out more
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