Doctors and nurses discussing while sitting around a table with documents in front of them

Welcome at EB Clinet

EB Clinet is an international platform that ensures the best possible patient care and enables innovation by connecting health care professionals who work with EB, sharing and retaining EB expertise, and promoting collaboration and development.

About the initiative EB Clinet Contacts

EB Clinet Conference 2024

On 17-18 October 2024, health professionals from all over the world met in Vienna to exchange information on the latest developments in EB treatment.

Details & registration

Child with EB with dressings on hands and arms sitting in front of a care taker

EB Clinical Practice Guidelines

CPGs give recommendations for clinical care of EB patients, based on evidence gained from medical science and expert opinion.

More about CPGs

About EB Clinet

Why is EB Clinet important for health care professionals working with EB patients? How do we support the medical EB community? We asked some of our contacts to share their thoughts on EB Clinet and are immensely proud on the feedback we could gather.

See the video and be inspired to become part of this amazing community!

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Community for nurses

Nursing Forum for EB Care

This forum supports nurses caring for people living with EB by providing an easily accessible platform for the exchange of questions, knowledge and experiences.

Find out more

Upcoming events & training

See all events

People in Circle holding their Hands Together in the middle, view from the top

Joining the EB Clinet network

To date, our network for health care professionals working in the field of EB already counts more than 115 clinical contacts in 55 countries worldwide. Do you want to become a part of the EB Clinet initiative?

Join EB Clinet now!