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EB Clinet Online Seminar

The EB Clinet Online Seminars are web-based informative events for health care professionals working in the field of Epidermolysis Bullosa, covering different topics from different medical specialties.

Here you will find information about seminars that have already taken place or will be held in the near future. The seminars are free of charge and will be streamed live via YouTube. If possible a recording of the seminar will be provided afterwards.

 

The speakers Dr Tobias Welponer Fries and Dr Agnes Schwieger-Briel together with guests will highlight treatment options from their perspective as EB specialists, as well as from the perspective of external specialists in the field of itching and pain.

Further details & registration

A seminar held by Natalie Yerlett, Dietetic Lead EB, GOSH London, UK and Jennifer Phillips, Paediatric EB Dietitian, Cincinnati, USA, giving an insight on the day-to-day challenge of a well-balanced and adequate diet for children with EB.

Details & recording

A seminar held by Joanna Willen, MSc and Sam Geuens, MSc, giving an overview about psychological developmental steps and discuss problems that could occur in these phases due to EB (covering all EB subtypes).

Details & recording

A seminar held by Dr Susanne Krämer, giving an introduction on the new guideline and discussing about ‘microstomia and mouth opening strategies’ as well as ‘strategies to manage mouth ulcers’.

Details & recording
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