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EB Clinet Online Seminar

The EB Clinet Online Seminars are web-based informative events for health care professionals working in the field of Epidermolysis Bullosa, covering different topics from different medical specialties.

Here you will find information about seminars that have already taken place or will be held in the near future. The seminars are free of charge. If possible a recording of the seminar will be provided afterwards.

 

Moving On – Transitioning EB Care from Paediatric to Adult Services

In this seminar, Dr Anna Martinez and her co-presenters review the physiological aspects of puberty in EB and share knowledge & practices that facilitate appropriate individual support before, during and after transition.

Details & recording
EB Clinet Online Seminar Diagnosis and Care of the Newborn with EB

Diagnosis and Care of the Newborn with EB

In this seminar, EB expert Anne W. Lucky, MD; together with her co-speakers, provides a comprehensive overview on current standards in diagnosis and treatment recommendations for neonates with EB.

Details & recording

Nutritional Needs and Anemia in Adults with EB

A seminar held by Prof Anna Bruckner, giving an insight on the basic principles of nutrition for adults living with EB and putting a focus on one of the most common secondary effects: anemia.

Details & recording
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Itch & Pain in EB

The speakers Dr Tobias Welponer and Dr Agnes Schwieger-Briel give an overview about the pathophysiology of itch and of pain. Together with the guest speakers, Dr Manuel P. Pereira and Dr Nicholas Schräder, they discuss selected clinical cases and highlight different treatment options.

Details & recording

Nutritional Aspects for Children with EB

A seminar held by Natalie Yerlett, Dietetic Lead EB, GOSH London, UK and Jennifer Phillips, Paediatric EB Dietitian, Cincinnati, USA, giving an insight on the day-to-day challenge of a well-balanced and adequate diet for children with EB.

Details & recording
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Psychological Development and EB

A seminar held by Joanna Willen, MSc and Sam Geuens, MSc, giving an overview about psychological developmental steps and discuss problems that could occur in these phases due to EB (covering all EB subtypes).

Details & recording
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Oral Health Care and EB

A seminar held by Dr Susanne Krämer, giving an introduction on the new guideline and discussing about ‘microstomia and mouth opening strategies’ as well as ‘strategies to manage mouth ulcers’.

Details & recording

SEE ALSO

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Professional Training & EB-related Events

A schedule of and information on professional training offered worldwide as well as conferences, symposia, and other EB related events can be found here.

See the schedule
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Clinical Practice Guidelines

Clinical practice guidelines (CPGs) are recommendations for physicians for the treatment and care of patients with certain conditions developed by DEBRA International.

More about CPGs
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Resources

Newsletter, Literature & Co - there are different resources, that can help you to keep informed about new developments in the field of EB.

Discover the resources
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