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EB Clinet Online Seminar

The EB Clinet Online Seminars are web-based informative events for health care professionals working in the field of Epidermolysis Bullosa, covering different topics from different medical specialties.

Here you will find information about seminars that have already taken place or will be held in the near future. The seminars are free of charge and will be streamed live via YouTube. If possible a recording of the seminar will be provided afterwards.

 

On 4 April 2024 at 12 pm UTC Dr Anna Martinez and her co-presenters will review the physiological aspects of puberty in EB and share knowledge & practices that facilitate appropriate individual support of adolescents and emerging adults; before, during and after transition.

Details & registration

In this seminar, EB expert Anne W. Lucky, MD; together with her co-speakers, provides a comprehensive overview on current standards in diagnosis and treatment recommendations for neonates with EB.

Details & recording

A seminar held by Prof Anna Bruckner, giving an insight on the basic principles of nutrition for adults living with EB and putting a focus on one of the most common secondary effects: anemia.

Details & recording

The speakers Dr Tobias Welponer and Dr Agnes Schwieger-Briel give an overview about the pathophysiology of itch and of pain. Together with the guest speakers, Dr Manuel P. Pereira and Dr Nicholas Schräder, they discuss selected clinical cases and highlight different treatment options.

Details & recording

A seminar held by Natalie Yerlett, Dietetic Lead EB, GOSH London, UK and Jennifer Phillips, Paediatric EB Dietitian, Cincinnati, USA, giving an insight on the day-to-day challenge of a well-balanced and adequate diet for children with EB.

Details & recording

A seminar held by Joanna Willen, MSc and Sam Geuens, MSc, giving an overview about psychological developmental steps and discuss problems that could occur in these phases due to EB (covering all EB subtypes).

Details & recording

A seminar held by Dr Susanne Krämer, giving an introduction on the new guideline and discussing about ‘microstomia and mouth opening strategies’ as well as ‘strategies to manage mouth ulcers’.

Details & recording
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