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Database of EB clinical trials

EB Resnet in cooperation with EB Clinet prepared a database summarising all interventional and observational studies involving EB. This database summarises registered EB trials on Clinicaltrials.gov, the EU Clinical Trials Register, the International Clinical Trials Registry Platform (ICTRP), and the UMIN Clinical Trials Registry.

Two separate tables can be found below, the first table showing all active studies and the second table listing completed studies. Trials of which the current status is unknown are not included.

The database classifies the displayed studies into the respective therapeutic access, contains a description and information on the route, EB type, and study phase, links directly to the respective study registry and the study sponsor.

Use the filter functions of the database to refine your search by therapeutic approach, EB type, or study phase. In addition, a search function is available that allows to search specifically for keywords or, for example, for a specific sponsor. The bar only shows the study phase and not how far the study has progressed within the phase. If no bar is displayed at all, it is either an observational study or no information on the study phase has been entered in the register.

Please be aware that EB Clinet cannot guarantee the completeness of the lists, even if they are updated on a regular basis.

Active Clinical Trials

This table provides you with a list of clinical studies whose status is registered as „active“. These studies are currently enrolling patients or, are supposed to start/continue soon. Use the Register link in the ID number column for more details about the current recruitment status of listed trials. The default setting ranks the studies according to the most recent and most advanced studies.

Last Update: 01.03.2025

Filter/Search

Therapeutic approach

Trial description

Route

EB subtype

Study phase

ID number

Status / Outcome

Status

Phase 1

Phase 2

Phase 3

Phase 4

No entries listed

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Closed Clinical Trials

This table gives an overview of closed studies. Some of them are 'withdrawn‘ or 'terminated,' meaning that the trial was closed before any results were achieved. In the case of completed studies, we also link to the relevant publications, if available or already published. Use the Register Link under the ID number column or the link in the Status column for more details.