Clinical trials currently recruiting and completed are registered on different public databases. Those websites allow to filter for certain diseases, country, study status and many more criteria.
If you want to join as a trial site best contact the sponsor given in the information on these sites.
If you plan to conduct an academic trial see the NIH Clinical Research Toolbox for an impression of required forms, documents and logs needed as basis for good clinical research:
Find all EB trials in the European Union (EU) or worldwide on the following websites:
ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world.
This database lists clinical trials that are conducted in the European Union and the European Economic Area.
Get to know more about the purpose and procedure of a clinical trial, as well as about the roles of the different players involved.