Forum for Mental Health Professionals Working with EB
This forum is a global community of mental health professionals dedicated to addressing the psychosocial challenges associated with Epidermolysis Bullosa (EB).
EB is a complex condition that deeply impacts all aspects of the lives of those affected, including patients and their families. To improve their quality of life and psychosocial wellbeing, it is crucial for individuals with EB to have access to multidisciplinary support, including psychological counselling.
The forum is a global community and serves as a platform for mental health professionals working in the field of EB, where members meet virtually twice a year to exchange information, share experiences, and discuss both clinical practices and psychological research.
The aim is to provide a space for regular collaboration and the potential for joint research to better understand and address the mental health needs of individuals living with EB.
The forum is open to professionals from the following fields:
psychology
psychotherapy
psychiatry
social work
counselling
psychological therapy
The leadership of the forum will remain with Dr Jodie Fellows, consultant clinical psychologist (UK), and Dr Dr Gudrun Salamon, researcher and psychological consultant (AT), until spring 2027.
If you would like to know more about the meetings, please contact Jodie and Gudrun via email (email Jodie | email Gudrun)
If you are a mental health professional and are interested in registering for the next meeting, please contact Julia Holla (email Julia)
