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Tools, Links & Further Information

This section collects different useful tools and interesting information to help you with diagnosis, treatment or management of patients living with EB.

A novel EB diagnostic system has been developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.

Diagnostic matrix

ERNs aim to improve medical care for rare diseases which require a highly specialised treatment.

More about the ERN-Skin

DEBRA Chile recently published a manual in Spanish about the treatment of EB patients.

Discover the Manual

A series of short educational videos put together by the EB team at Birmingham Children's Hospital to help healthcare professionals

Details about the videos
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