This section collects different useful tools and interesting information to help you with diagnosis, treatment or management of patients living with EB.
A novel EB diagnostic system has been developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.
The EB-CLINET Online Seminars are web-based informative events for health care professionals working in the field of EB.
Animated videos explaining EB are a good tool to provide information of how living with EB is like and about the causes and effects of the disease.
A series of short educational videos put together by the EB team at Birmingham Children's Hospital to help healthcare professionals
ERNs aim to improve medical care for rare diseases which require a highly specialised treatment.
DEBRA Chile recently published a manual in Spanish about the treatment of EB patients.
Information and recommendations for the EB Community regarding the current coronavirus (COVID-19) outbreak.
A platform for nurses working in the field of EB care to foster the exchange of questions and experiences.