This section collects different useful tools and interesting information to help you with diagnosis, treatment or management of patients living with EB.
A novel EB diagnostic system has been developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.
Animated videos explaining EB are a good tool to provide information of how living with EB is like and about the causes and effects of the disease.
ERNs aim to improve medical care for rare diseases which require a highly specialised treatment.
DEBRA Chile recently published a manual in Spanish about the treatment of EB patients.
A series of short educational videos put together by the EB team at Birmingham Children's Hospital to help healthcare professionals
Information and recommendations for the EB Community regarding the current coronavirus (COVID-19) outbreak.
A platform for nurses working in the field of EB care to foster the exchange of questions and experiences.