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Tools, Links & Further Information

This section collects different useful tools and interesting information to help you with diagnosis, treatment or management of patients living with EB.

A novel EB diagnostic system has been developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.

Diagnostic matrix

Animated videos explaining EB are a good tool to provide information of how living with EB is like and about the causes and effects of the disease.

Discover the videos

ERNs aim to improve medical care for rare diseases which require a highly specialised treatment.

More about the ERN-Skin

DEBRA Chile recently published a manual in Spanish about the treatment of EB patients.

Discover the Manual

A series of short educational videos put together by the EB team at Birmingham Children's Hospital to help healthcare professionals

Details about the videos
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