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Links – Tools - Information material

Useful Resources

There are different resources, that can help you to keep informed about new developments in Epidermolysis Bullosa.


The EB-CLINET Newsletter keeps you informed about new developments in the field of EB.

Subscribe to the newsletter

Information and recommendations for the EB Community regarding the current coronavirus (COVID-19) outbreak.

Information on Covid-19 & EB

A platform for nurses working in the field of EB care to foster the exchange of questions and experiences.

Discover the nurses forum

A short overview about professional literature published about the rare disease Epidermolysis Bullosa.

More information

A novel EB diagnostic system has been developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.

Diagnostic matrix

ERNs aim to improve medical care for rare diseases which require a highly specialised treatment.

More about the ERN-Skin

DEBRA Chile recently published a manual in Spanish about the treatment of EB patients.

Discover the Manual
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