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Links – Tools - Information material

Useful Resources

There are different resources, that can help you to keep informed about new developments in Epidermolysis Bullosa.


The EB Clinet Newsletter keeps you informed about new developments in the field of EB.

Subscribe to the newsletter

Information and recommendations for the EB Community regarding the current coronavirus (COVID-19) outbreak.

Information on Covid-19 & EB

A platform for nurses working in the field of EB care to foster the exchange of questions and experiences.

Discover the nurses forum

Different tools and information to help you with diagnosis, treatment or management of patients living with EB.

Discover the tools

Specialist literature, clinical recommendations and publications about the rare disease Epidermolysis Bullosa.

More information
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