There are different resources, that can help you to keep informed about new developments in Epidermolysis Bullosa.
The EB-CLINET Newsletter keeps you informed about new developments in the field of EB.
A platform for nurses working in the field of EB care to foster the exchange of questions and experiences.
A short overview about professional literature published about the rare disease Epidermolysis Bullosa.
A novel EB diagnostic system has been developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.
ERNs aim to improve medical care for rare diseases which require a highly specialised treatment.
DEBRA Chile recently published a manual in Spanish about the treatment of EB patients.
Find here all completed Clinical Practice Guidelines to download.
If you are a healthcare professional working with EB patients, you are welcome to join the EB-CLINET network!