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Hand taking out a flyer about Epidermolysis Bullosa of a flyer rack

Links – Tools - Information material

Useful Resources

There are different resources, that can help you to keep informed about new developments in Epidermolysis Bullosa.

 

The EB-CLINET Newsletter keeps you informed about new developments in the field of EB.

Subscribe to the newsletter

There are several books published about the rare disease EB.

More information

A novel EB diagnostic system has been developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.

Diagnostic matrix

ERNs aim to improve medical care for rare diseases that require highly specialised treatment and a concentration of knowledge and resources.

More about the ERN-Skin

DEBRA Chile recently published a manual in Spanish about the treatment of EB patients.

Discover the Manual
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