There are different resources, that can help you to keep informed about new developments in Epidermolysis Bullosa.
The EB-CLINET Newsletter keeps you informed about new developments in the field of EB.
Information and recommendations for the EB Community regarding the current coronavirus (COVID-19) outbreak.
A platform for nurses working in the field of EB care to foster the exchange of questions and experiences.
Different tools and information to help you with diagnosis, treatment or management of patients living with EB.
Specialist literature, clinical recommendations and publications about the rare disease Epidermolysis Bullosa.
Find here all completed Clinical Practice Guidelines to download.
If you are a healthcare professional working with EB patients, you are welcome to join the EB-CLINET network!