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Links – Tools - Information material

Useful Resources

There are different resources, that can help you to keep informed about new developments in Epidermolysis Bullosa.

 

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Newsletter

The EB-CLINET Newsletter keeps you informed about new developments in the field of EB.

Subscribe to the newsletter
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Literature

There are several books published about the rare disease EB.

More information
start screen of an online system for the diagnosis of Epidermolysis Bullosa

Clinical Diagnostic Matrix

A novel EB diagnostic system has been developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.

Diagnostic matrix
Homepage of the ERN-Skin with slogan 'Bring the best care to the patient'

European Reference Network - ERN Skin

ERNs aim to improve medical care for rare diseases that require highly specialised treatment and a concentration of knowledge and resources.

More about the ERN-Skin

MORE INFORMATION

Doctor showing a little girl with epidermolysis bullosa how to do dressings on the childs soft toy

Completed EB Guidelines

Find here all completed Clinical Practice Guidelines to download.

Completed CPGs
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Join EB-CLINET

If you are a healthcare professional working with EB patients, you are welcome to join the EB-CLINET network!

Join now!
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