There are different resources, that can help you to keep informed about new developments in Epidermolysis Bullosa.
The EB-CLINET Newsletter keeps you informed about new developments in the field of EB.
There are several books published about the rare disease EB.
A novel EB diagnostic system has been developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.
ERNs aim to improve medical care for rare diseases that require highly specialised treatment and a concentration of knowledge and resources.
Find here all completed Clinical Practice Guidelines to download.
If you are a healthcare professional working with EB patients, you are welcome to join the EB-CLINET network!