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EB Clinet Online Seminar: Diagnosis and Care of the Newborn with EB

On 17 November 2023 at 1:00 pm UTC the next EB Clinet Online Seminar on the topic of ‘Diagnosis and Care of the Newborn with EB’ will take place.



Although EB is a very rare disease, the knowledge and information about the disease has increased significantly over the last years. Recent updates in the classification of EB have been published, preferred diagnostic methods and clinical care practices are also evolving. In this EB Clinet Online Seminar, based on the publication ‘Diagnosis and Care of the Newborn with Epidermolysis Bullosa’, lead author Anne W. Lucky, MD; will provide a comprehensive overview on current standards in diagnosis and treatment recommendations for EB.  

She will first discuss the best methods to accurately diagnose epidermolysis bullosa in an infant with fragile skin. The second focus of the seminar will be on the principles of skin care for neonates with EB, together with a consideration of the possible EB-associated comorbidities and complications. For this part Dr Lucky will be accompanied by two experienced nurses, who will demonstrate bandaging techniques and dressing material and give recommendations from their practice. The seminar will be rounded up by literature recommendations and a panel discussion, where Dr. Lucky and the co-authors of the publication, Jean Whalen, RN; Susan Rowe, RN; Kalyani S. Marathe, MD, MPH; Emily Gorell, DO, MS, will be available for your questions around the diagnosis and care for babies with EB.


Medical Director Epidermolysis Bullosa Center, Cincinnati Children's Hospital, USA and Professor of Dermatology and Pediatrics at the University of Cincinnati School of Medicine and at the Cincinnati Children’s Hospital, USA,

supported by the co-authors of the publication Diagnosis and Care of the Newborn with Epidermolysis Bullosa:

Jean Whalen, RN; Susan Rowe, RN; Kalyani Marathe, MD; Emily Gorell, DO


Date: 17 November 2023, 1:00 pm UTC

Duration: 90 minutes including Q&A session and panel discussion


Every participant will receive a link to attend the live online seminar in the week before the seminar takes place. The  EB Clinet Online Seminar is free of charge. It will be held via Zoom, questions will be possible using the chat function.

This seminar is designed to help provide comprehensive care for those affected by EB, it is tailored to an audience of health care professionals working with EB.

Please forward the information to your colleagues who might be interested to join.


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