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Child with EB with dressings on hands and arms sitting in front of a care taker

Specialized care for a rare disease
Clinical Practice Guidelines for EB

Clinical practice guidelines (CPGs) are recommendations for physicians for the treatment and care of patients with certain conditions. The guidelines are based on evidence gained from medical science and the practice experience of experts.

EB-CLINET supports DEBRA International in undertaking a long-term initiative to develop clinical practice guidelines (CPGs) for EB.

Find here all completed Clinical Practice Guidelines for download.

Completed CPGs

See which guidelines are already in development and which topics are planned.

Future EB Guidelines

With your experience you can help to improve the lives of people living with EB - become part of a panel for EB guideline development.

More information

Clinical Practice Guidelines

  • offer instructions for adequate treatment based on the best available scientific evidence and a broad consensus
  • ensure appropriate care and support the decision-making process in clinical practice
  • encourage and provide suggestions for further education
  • foster the efficient use of resources
  • build a basis for quality control
  • identify lacks in the existing literature and support corresponding future research
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