Skip to content

EB Clinet Conference 2024: Programme

The full EB Clinet Conference 2024 programme will feature a mixture of topics important to the medical EB community.

Download - Preliminary programme EB Clinet Conference 2024

Detailed preliminary programme

Thursday 17 October 2024
08:00 - 12:30           Registration
Inflamation in EB

09:00 - 09:10

Welcome and opening day 1

Sophie Kitzmüller

09:05 - 09:50

Keynote lecture: Inflammatory features on EB

John McGrath

09:50 - 10:10

Biological agents and JAK inhibitors for dystrophic epidermolysis bullosa

Chao-Kai Hsu

10:10 - 10:30

Novel therapies targeting inflammation in EB

Dimitra Kiritsi
Coffee break
Sponsor symposium 11:00 - 11:30 Sponsor Symposium tbc

Clinical research projects

11:30 - 11:45

Current clinical trial landscape in EB

Jakub Tolar

11:45 - 12:00

COSEB

Marieke Bolling
12:00 - 12:10 Measuring outcomes in epidermolysis bullosa - a regulatory perspective Marjon Pasmooij

12:10 - 12:30

Revertant Mosaicism

Ken Natsuga
Lunch

Clinical management strategies I

13:30 - 13:50

Clinical and molecular diagnosis methods for EB Cristina Has

13:50 - 14:10

Neonatal care

Rebecca Saad

14:10 - 14:30

Anemia

Anna Bruckner

14:30 - 14:50

Opthalmological care options Michael Baertschi

14:50 - 15:10

Dental care

Susanne Krämer

15:10 - 15:30

Pain treatment

Nicholas Schräder
Coffee break
Multidisciplinary care models

16:00 - 16:20

Importance of multidisciplinary care - Best practice example EB House Austria

Tobias Welponer

16:20 - 16:40

Managing EB in resource limited settings Dharshini Sathishkumar

16:40 - 17:00

Transition from pediatric to adult care Anna Martinez

17:00 - 17:20

Benefits of community outreach nurses/home care nurses Alvaro Villar
  17:20 - 17:30 Psychosocial needs of EB patients and families Gudrun Salamon
Close
19:30 - 22:30 Networking Evening

 

Friday, 18 October 2024

Cancer in EB

09:00 - 09:10

Welcome and opening day 2 Sophie Kitzmüller

09:10 - 09:55

Keynote lecture: Current knowledge about cancer biology in EB

Andrew South

09:55 - 10:15

Current standards for SCC diagnosis and treatment Jemima Mellerio

10:15 - 10:30

Current novel/tested treatment agents for SCC Johann Bauer
Coffee break
Gene therapy

10:50 - 11:30

Approved and upcoming gene therapy approached for EB Peter Marinkovich
Surgical interventions in EB

11:30 - 11:50

Oesophageal strictures

Athanasios Diamantopoulos
11:50 - 12:10

Gastrostomy

Agnes Schwieger-Briel

12:10 - 12:30

Hand surgery

Paige Fox

12:30 - 12:50

Anaesthesia

Michael Duncan
Photo 12:50 - 13:00 Group photo Ludwig Schedl
Lunch

Clinical management strategies II

13:50 - 14:10

Occupational therapy/Ergotherapy Jennifer Chan

14:10 - 14:30

Psychological support for patients and families Joanna Willen

14:30 - 14:50

Nutrition

Natalie Yerlett

14:50 - 15:10

Podiatry

Tariq Khan

15:10 - 15:30

Pregnancy, childbirth and aftercare

Mauricio Torres-Pradilla

15:30 - 15:50

Palliative care

Mark Popenhagen
Coffee break
Spotlight EB Simplex

16:15 - 16:45

Care plans for EBS patients (including rare EBS subtypes)

Cristina Has

16:45 - 17:05

Genotype–phenotype correlations in EBS with KRT5 and KRT14 mutations

Christine Chiaverini
  17:05 - 17:15 Conference Closing Remarks Sophie Kitzmüller
Close

 

Professionals Forums

Thursday, 17 October 2024

10:00 - 12:30

Nursing Care in EB

Jose Duipmans & Sharon Cassidy

13:30 - 16:00

Occupational Therapy in EB

Alex King
Friday, 18 October 2024

10:00 - 12:30

Nutrition in EB Natalie Yerlett & Jennifer Philipps

 

Information about the Networking Evening

 

The Networking Evening - a buffet dinner with classical Austrian cuisine - will bring together a large number of participants and provides the opportunity for in-depth discussions and professional dialogue with experts in a nice athmosphere.

Join us at the Networking Evening on Thursday, 17 October 2024 directly at the conference venue Vienna Marriott Hotel and take the chance to exchange with colleagues and potential cooperation partners and to discuss project ideas or complicated cases.

When: Thursday 17 October 2024    
Time: approximately 19:30 – 22:30
Where: Vienna Marriott Hotel | Parkring 12A | 1010 Vienna | Austria | Vienna Marriott Website

Show location on Google maps

Tickets: 85,- EUR;  including a welcome drink, a buffet dinner with classical Austrian cuisine and selected drinks.

Seats: Limited number of seats.

Special diets: Limited vegan and gluten free options are available. Unfortunately, the caterer cannot accommodate any other special dietary requirements.

Dress code: Smart casual.

Please note: It will not be possible to purchase tickets for the conference dinner on site. Subject to availability, tickets can be purchased via the registration link until 30 September.

Tickets for the conference dinner are non-refundable. Please remember to bring your dinner ticket to the dinner.

Back to main navigation