EB Clinet Conference 2024: Programme
The full EB Clinet Conference 2024 programme will feature a mixture of topics important to the medical EB community.
| Thursday 17 October 2024 | |||
|---|---|---|---|
| 08:00 - 12:30 Registration | |||
| Inflamation in EB | 09:00 - 09:10 | Welcome and opening day 1 | Sophie Kitzmüller |
09:05 - 09:50 | Keynote lecture: Inflammatory features on EB | John McGrath | |
09:50 - 10:10 | Biological agents and JAK inhibitors for dystrophic epidermolysis bullosa | Chao-Kai Hsu | |
10:10 - 10:30 | Novel therapies targeting inflammation in EB | Dimitra Kiritsi | |
| Coffee break | |||
| Sponsor symposium | 11:00 - 11:30 | Sponsor Symposium | tbc |
Clinical research projects | 11:30 - 11:50 | Current clinical trial landscape in EB | Jakub Tolar |
11:50 - 12:10 | COSEB | Marieke Bolling | |
12:10 - 12:30 | Revertant Mosaicism | Ken Natsuga | |
| Lunch | |||
Clinical management strategies I | 13:30 - 13:50 | Clinical and molecular diagnosis methods for EB | Cristina Has |
13:50 - 14:10 | Neonatal care | Rebecca Saad | |
14:10 - 14:30 | Anemia | Anna Bruckner | |
14:30 - 14:50 | Opthalmological care options | Michael Baertschi | |
14:50 - 15:10 | Dental care | Susanne Krämer | |
15:10 - 15:30 | Pain treatment | Nicholas Schräder | |
| Coffee break | |||
| Multidisciplinary care models | 16:00 - 16:25 | Importance of multidisciplinary care - Best practice example EB House Austria | Tobias Welponer |
16:25 - 16:45 | Managing EB in resource limited settings | Dharshini Sathishkumar | |
16:45 - 17:05 | Transition from pediatric to adult care | Anna Martinez | |
17:05 - 17:25 | Benefits of community outreach nurses/home care nurses | Alvaro Villar | |
| Close | |||
| Conference Dinner | |||
Friday, 18 October 2024 | |||
|---|---|---|---|
| Cancer in EB | 09:00 - 09:10 | Welcome and opening day 2 | Sophie Kitzmüller |
09:10 - 09:55 | Keynote lecture: Current knowledge about cancer biology in EB | Andrew South | |
09:55 - 10:15 | Current standards for SCC diagnosis and treatment | Jemima Mellerio | |
10:15 - 10:30 | Current novel/tested treatment agents for SCC | Johann Bauer | |
| Coffee break | |||
| Gene therapy | 10:50 - 11:30 | Approved and upcoming gene therapy approached for EB | Peter Marinkovich |
| Surgical interventions in EB | 11:30 - 11:50 | Oesophageal strictures | tbc |
| 11:50 - 12:10 | Gastrostomy | Agnes Schwieger-Briel | |
12:10 - 12:30 | Hand surgery | tbc | |
12:30 - 12:50 | Anaesthesia | Michael Duncan | |
| Photo | 12:50 - 13:00 | Group photo | Ludwig Schedl |
| Lunch | |||
Clinical management strategies II | 13:50 - 14:10 | Occupational therapy/Ergotherapy | Jennifer Chan |
14:10 - 14:30 | Psychological support for patients and families | Joanna Willen | |
14:30 - 14:50 | Nutrition | Natalie Yerlett | |
14:50 - 15:10 | Podiatry | Tariq Khan | |
15:10 - 15:30 | Pregnancy, childbirth and aftercare | Mauricio Torres-Pradilla | |
15:30 - 15:50 | Palliative care | Mark Popenhagen | |
| Coffee break | |||
| Spotlight EB Simplex | 16:15 - 16:45 | Care plans for EBS patients (including rare EBS subtypes) | Cristina Has |
16:45 - 17:05 | Genotype–phenotype correlations in EBS with KRT5 and KRT14 mutations | Christine Chiaverini | |
| 17:05 - 17:15 | Conference Closing Remarks | Sophie Kitzmüller | |
| Close | |||
Professionals Forums | |||
|---|---|---|---|
| Thursday, 17 October 2024 | 10:00 - 12:30 | Nutrition in EB | Natalie Yerlett & Jennifer Philipps |
13:30 - 16:00 | Occupational Therapy in EB | Alex King | |
| Friday, 18 October 2024 | 10:00 - 12:50 | Nursing Care in EB | Jose Duipmans & Sharon Cassidy |
Information about the conference dinner
Join us at the prestigious dinner venue, the Natural History Museum Vienna (Naturhistorisches Museum Wien).
About the museum:
Founded over 270 years ago, we are a research museum whose origins date back to the imperial collections of the 18th century. "Dedicated to the kingdom of nature and its exploration", our building, exhibitions and collections form a total work of art with a unique atmosphere in the heart of Vienna.
About the special exhibition:
The exhibition focuses on the unique nature of the Arctic, its fascination, fragility and the rapid changes taking place in the Arctic regions. The clearly visible and measurable effects of climate change, as well as the geopolitical shifts these have led to, have placed the Arctic at the center of global attention. This exhibition discusses the many facets and roles of this unique ecosystem from a range of perspectives. It shows that the Arctic's crucial global role means today it is more closely connected than ever to all our lives.
We will start with a welcome drink and a guided tour of a special exhibition in the museum, followed by a 3-course buffet dinner with drinks and the opportunity to network in a relaxed atmosphere.
When: Thursday 17 October 2024
Time: approximately 19:00 – 23:00
Where: Natural History Museum Vienna | Burgring 7 | 1010 Vienna, Austria | www.nhm-wien.ac.at
How to get there: The Natural History Museum Vienna is located 4 stops/12 minutes away by tram from the conference venue.
After a short walk of 1 minute/50 m you can reach the station Weinburggasse. Take the tram (Line 2) direction Dornbach and get off at station Ring/Volkstheater. From Ring/Volkstheater station the dinner venue is only a 4 minutes/280m walk away.
Tickets: 89€ includes welcome drink, a guided tour of a special exhibition in the museum, a 3-course buffet dinner and selected drinks.
Seats: Limited number of seats.
Special diets: Limited vegan and gluten free options are available. Unfortunately, the caterer cannot accommodate any other special dietary requirements.
Dress code: Smart casual.
Please note: There will be no opportunity to buy tickets for the conference dinner onsite. Subject to availability, tickets can be purchased via the registration link until 30 September at the latest.
Tickets for the conference dinner are non-refundable. Please remember to bring your dinner ticket to the dinner.
