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EB Clinet Conference 2024: Programme

The full EB Clinet Conference 2024 programme will feature a mixture of topics important to the medical EB community.

Download - Preliminary programme EB Clinet Conference 2024

Detailed preliminary programme

The speakers for each topic are still being discussed. They will be announced shortly.

Thursday 17 October 2024
08:00 - 12:30           Registration
Inflamation in EB

09:00 - 09:10

Welcome and opening day 1

09:05 - 09:50

Keynote lecture: Inflammatory features on EB

09:50 - 10:10

Biological agents and JAK inhibitors for dystrophic epidermolysis bullosa

10:10 - 10:30

Novel therapies targeting inflammation in EB

Coffee break
Sponsor symposium 11:00 - 11:30 Sponsor Symposium

Clinical research projects

11:30 - 11:50

Current clinical trial landscape in EB

11:50 - 12:10

COSEB

12:10 - 12:30

Revertant Mosaicism

Lunch

Clinical management strategies I

13:30 - 13:50

Clinical and molecular diagnosis methods for EB

13:50 - 14:10

Neonatal care

14:10 - 14:30

Anemia

14:30 - 14:50

Opthalmological care options

14:50 - 15:10

Dental care

15:10 - 15:30

Pain treatment

Coffee break
Multidisciplinary care models

16:00 - 16:25

Importance of multidisciplinary care - Best practice example EB House Austria

16:25 - 16:45

Managing EB in resource limited settings

16:45 - 17:05

Transition from pediatric to adult care

17:05 - 17:25

Benefits of community outreach nurses/home care nurses
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Conference Dinner

 

Friday, 18 October 2024

Cancer in EB

09:00 - 09:10

Welcome and opening day 2

09:10 - 09:55

Keynote lecture: Current knowledge about cancer biology in EB

09:55 - 10:15

Current standards for SCC diagnosis and treatment

10:15 - 10:30

Current novel/tested treatment agents for SCC
Coffee break
Gene therapy

10:50 - 11:30

Approved and upcoming gene therapy approached for EB
Surgical interventions in EB

11:30 - 11:50

Oesophageal strictures

11:50 - 12:10

Gastrostomy

12:10 - 12:30

Hand surgery

12:30 - 12:50

Anaesthesia

Lunch

Clinical management strategies II

13:50 - 14:10

Occupational therapy/Ergotherapy

14:10 - 14:30

Psychological support for patients and families

14:30 - 14:50

Nutrition

14:50 - 15:10

Podiatry

15:10 - 15:30

Pregnancy, childbirth and aftercare

15:30 - 15:50

Palliative care

Coffee break
Spotlight EB Simplex

16:15 - 16:45

Care plans for EBS patients (including rare EBS subtypes)

16:45 - 17:05

Genotype–phenotype correlations in EBS with KRT5 and KRT14 mutations

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Professionals Forums

Thursday, 17 October 2024

10:00 - 12:30

Nutrition in EB

13:30 - 16:00

Occupational Therapy in EB

Friday, 18 October 2024

10:00 - 12:50

Nursing Care in EB

 

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