EB is a systemic condition that requires a holistic approach to care. A solid understanding of the condition's pathophysiology, clinical presentation and management principles is essential for any healthcare professional involved in patient care.
In this EB Clinet Online Seminar, the medical team of the Expertise Center of the EB House Austria, offers the opportunity to gain a basic knowledge of EB, relevant for nurses and doctors.
The experts deliver an introductory presentation on the genetic and diagnostic fundamentals of EB. This is followed by a presentation on the team's experiences of providing comprehensive care, along with recommendations for the basic care of newborns. The team also shares their experiences of educating parents, caregivers and patients of all ages to ensure the best possible transition to home care.
Clinical practice guidelines (CPGs) are recommendations for physicians for the treatment and care of patients with certain conditions developed by DEBRA International.
