EB Clinet Online Seminar: Sexual Health - From Puberty to Childbirth
On 26 November 2026 at xy pm UTC the next EB Clinet Online Seminar, covering the topic 'Sexual Health - From Puberty to Childbirth', will take place.
Growing up, navigating sexuality and experiencing pregnancy and childbirth can raise unique questions and challenges for people living with EB. This seminar will bring together important perspectives on providing sensitive, informed and individualised care throughout these different stages of life.
Topics will include:
Puberty, sexuality and psychosocial well-being: Understanding the emotional, social and practical aspects of growing up and exploring sexuality with EB.
Gynaecological examinations: Addressing specific considerations, potential challenges and approaches to making examinations as safe, comfortable and respectful as possible.
Pregnancy and childbirth: Exploring key considerations for people with EB and healthcare professionals (HCPs) before, during and after childbirth.
Speakers:
Alex King - Occupational Therapist (OTR/L) and Child Life Specialist (CCLS), Human Sense, LLC & King Methods, LLC, Phoenix, AZ, USA
Dr. Mauricio Torres-Pradilla - General dermatologist and Paediatric dermatologist, Head of the Postgraduate Programme in Dermatology, FUCS University, San JosĆ© Hospital ā San JosĆ© University Childrenās Hospital, Bogota, Colombia
Date: 26 November 2026, 5:00pm UTC
Duration: approximately 60 minutes, there will be also time for Q&A session and panel discussion
Venue: ONLINE via Zoom
Every participant will receive a link to attend the live online seminar a day before the seminar takes place. The EB Clinet Online Seminar is free of charge. It will be held via Zoom, questions will be possible using the chat function.
This seminar is designed to help provide comprehensive care for those affected by EB, it is tailored to an audience of health care professionals working with EB.
Please forward the information to your colleagues who might be interested to join.
