Completed EB Clinical Practice Guidelines
The following CPGs are already completed and can be downloaded here.
Cancer Management
Management of cutaneous squamous cell carcinoma in patients with epidermolysis bullosa: best clinical practice guidelines / Published 2016
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Foot Care
Foot care in Epidermolysis bullosa: Evidence‐based Guideline / Published 2019
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Laboratory Diagnosis
Clinical Practice Guidelines for Epidermolysis Bullosa Laboratory Diagnosis / Published 2019
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Occupational Therapy
Occupational therapy for epidermolysis bullosa: clinical practice guidelines / Published June 2019
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Oral Health Care
Oral Health Care for Patients with Epidermolysis Bullosa - Best Clinical Practice Guidelines / Published 2012
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Pain Management
Pain care for patients with epidermolysis bullosa: best care practice guidelines / Published 2014
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Preventative Nutritional Care
Constipation management for children and adults with epidermolysis bullosa (EB). An expert working group consensus / Published 2020
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Psychosocial Care
Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines / Published 2019
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Wound Care
Best Practice Guidelines: Skin and Wound Care in Epidermolysis Bullosa / Published 2017
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Wound Care (Spanish)
Guía de buena práctica clínica: Cuidado de la piel y de las heridas en la Epidermólisis Bullosa / Published 2017
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