Completed EB Clinical Practice Guidelines
The following CPGs are already completed and can be downloaded here.
Anemia
Consensus guidelines for diagnosis and management of anemia in epidermolysis bullosa | Published 2023 | Funded by DEBRA Canada
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Cancer Management
Management of cutaneous squamous cell carcinoma in patients with epidermolysis bullosa: best clinical practice guidelines | Published 2016
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Foot Care
Foot care in Epidermolysis bullosa: Evidenceābased Guideline | Published 2019 | Funded by DEBRA UK
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Hand Surgery and Hand Therapy
Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa | Published 2022 | Funded by DEBRA UK
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Laboratory Diagnosis
Clinical Practice Guidelines for Epidermolysis Bullosa Laboratory Diagnosis | Published 2019 | Funded by DEBRA Austria
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Neonatal
Neonatal epidermolysis bullosa: a clinical practice guideline | Published 2024 | Funded by DEBRA UK
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Occupational Therapy
Occupational therapy for epidermolysis bullosa: clinical practice guidelines | Published 2019 | Funded by DEBRA of America
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Oral Health Care
Clinical practice guidelines: Oral health care for children and adults living with epidermolysis bullosa | Published 2020 | Funded by DEBRA UK
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Pain Management
Pain care for patients with epidermolysis bullosa: best care practice guidelines | Published 2014
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Physiotherapy
Physiotherapy for epidermolysis bullosa:clinical practice guidelines | Published 2021 | Funded by DEBRA of America
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Pregnancy, Childbirth and Aftercare
Recommendations on pregnancy, childbirth and aftercare in epidermolysis bullosa: a consensus-based guideline | Published 2021 | Funded by DEBRA UK
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Preventative Nutritional Care
Constipation management for children and adults with epidermolysis bullosa (EB). An expert working group consensus | Published 2020
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Provision of Palliative and End-of-Life Care
Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa | Published 2023 | Funded by DEBRA UK
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Psychosocial Care
Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines | Published 2019 | Funded by DEBRA Norway
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Supporting Sexuality
Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines | Published 2021 | Funded by DEBRA Norway
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Wound Care
Best Practice Guidelines: Skin and Wound Care in Epidermolysis Bullosa | Published 2017
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Wound Care (Spanish)
GuĆa de buena prĆ”ctica clĆnica: Cuidado de la piel y de las heridas en la EpidermĆ³lisis Bullosa | Published 2017
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Provision of Palliative and End-of-Life Care
Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa | Published 2023 | Funded by DEBRA UK
Download PDF Psychosocial Care
Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines | Published 2019 | Funded by DEBRA Norway
Download PDF Supporting Sexuality
Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines | Published 2021 | Funded by DEBRA Norway
Download PDF Wound Care
Best Practice Guidelines: Skin and Wound Care in Epidermolysis Bullosa | Published 2017
Download PDF Wound Care (Spanish)
GuĆa de buena prĆ”ctica clĆnica: Cuidado de la piel y de las heridas en la EpidermĆ³lisis Bullosa | Published 2017
Download PDFNo documents listed