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Doctor doing a dressing for the soft toy of a little girl with epidermolysis bullosa

Completed EB Clinical Practice Guidelines

The following CPGs are already completed and can be downloaded here.

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Cancer Management

Management of cutaneous squamous cell carcinoma in patients with epidermolysis bullosa: best clinical practice guidelines / Published 2016

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Foot Care

Foot care in Epidermolysis bullosa: Evidence‐based Guideline / Published 2019

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Laboratory Diagnosis

Clinical Practice Guidelines for Epidermolysis Bullosa Laboratory Diagnosis / Published 2019

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Occupational Therapy

Occupational therapy for epidermolysis bullosa: clinical practice guidelines / Published June 2019

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Oral Health Care

Oral Health Care for Patients with Epidermolysis Bullosa - Best Clinical Practice Guidelines / Published 2012

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Pain Management

Pain care for patients with epidermolysis bullosa: best care practice guidelines / Published 2014

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Psychosocial Care

Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines / Published 2019

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Wound Care

Best Practice Guidelines: Skin and Wound Care in Epidermolysis Bullosa / Published 2017

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Wound Care (Spanish)

Guía de buena práctica clínica: Cuidado de la piel y de las heridas en la Epidermólisis Bullosa / Published 2017

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