Completed EB Clinical Practice Guidelines
The following CPGs are already completed and can be downloaded here.
![Clinical Practice Guideline Diagnosis and Management of Anemia in EB Spenden gutesiegel](/fileadmin/_processed_/d/b/csm_CPG_Anemia_162x229_30afde4a39.jpg)
Anemia
Consensus guidelines for diagnosis and management of anemia in epidermolysis bullosa | Published 2023 | Funded by DEBRA Canada
Download PDF![Clinical Practice Guideline Cancer Management Spenden gutesiegel](/fileadmin/_processed_/6/c/csm_CPG_Cancer_Management_162x228_2ecebcef22.jpg)
Cancer Management
Management of cutaneous squamous cell carcinoma in patients with epidermolysis bullosa: best clinical practice guidelines | Published 2016
Download PDF![Clinical Practice Guideline Foot Care Spenden gutesiegel](/fileadmin/_processed_/a/3/csm_CPG_Foot_Care_162x228_be4577773f.jpg)
Foot Care
Foot care in Epidermolysis bullosa: Evidence‐based Guideline | Published 2019 | Funded by DEBRA UK
Download PDF![Spenden gutesiegel](/fileadmin/_processed_/0/5/csm_CPG_Hand_Surgery_and_Hand_Therapy_162x228_34ef2af967.jpg)
Hand Surgery and Hand Therapy
Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa | Published 2022 | Funded by DEBRA UK
Download PDF![Clinical Practice Guideline Laboratory Diagnosis for EB Spenden gutesiegel](/fileadmin/_processed_/f/9/csm_CPG_Laboratory_Diagnosis_162x228_a164ca0808.jpg)
Laboratory Diagnosis
Clinical Practice Guidelines for Epidermolysis Bullosa Laboratory Diagnosis | Published 2019 | Funded by DEBRA Austria
Download PDF![Clinical Practice Guideline Occupational Therapy Spenden gutesiegel](/fileadmin/_processed_/b/a/csm_CPG_Occupational_Therapy_162x228_95a2f43eb5.jpg)
Occupational Therapy
Occupational therapy for epidermolysis bullosa: clinical practice guidelines | Published 2019 | Funded by DEBRA of America
Download PDF![Clinical Practice Guideline Oral Health Care Spenden gutesiegel](/fileadmin/_processed_/c/b/csm_CPG_Oral_Health_Care_New_162x228_a5dda7e2b7.jpg)
Oral Health Care
Clinical practice guidelines: Oral health care for children and adults living with epidermolysis bullosa | Published 2020 | Funded by DEBRA UK
Download PDF![Clinical Practice Guideline Pain Management Spenden gutesiegel](/fileadmin/_processed_/c/7/csm_CPG_Pain_Management_162x228_09948aa653.jpg)
Pain Management
Pain care for patients with epidermolysis bullosa: best care practice guidelines | Published 2014
Download PDF![Clinical Practice Guideline Physiotherapy Spenden gutesiegel](/fileadmin/_processed_/3/f/csm_CPG_Physiotherapy_162x229_54f37ef00d.jpg)
Physiotherapy
Physiotherapy for epidermolysis bullosa:clinical practice guidelines | Published 2021 | Funded by DEBRA of America
Download PDF![Spenden gutesiegel](/fileadmin/_processed_/d/2/csm_CPG_Pregnancy_and_Childbirth_162x228_4047796076.jpg)
Pregnancy, Childbirth and Aftercare
Recommendations on pregnancy, childbirth and aftercare in epidermolysis bullosa: a consensus-based guideline | Published 2021 | Funded by DEBRA UK
Download PDF![Spenden gutesiegel](/fileadmin/_processed_/1/6/csm_CPG_Nutrition_162x228_3a330f7422.jpg)
Preventative Nutritional Care
Constipation management for children and adults with epidermolysis bullosa (EB). An expert working group consensus | Published 2020
Download PDF![Spenden gutesiegel](/fileadmin/_processed_/4/b/csm_CPG_Palliative_and_End-of-Life_Care_162x229_14d7f1390d.jpg)
Provision of Palliative and End-of-Life Care
Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa | Published 2023 | Funded by DEBRA UK
Download PDF![Clinical Practice Guideline Psychosocial Care Spenden gutesiegel](/fileadmin/_processed_/b/0/csm_CPG_Psychosocial_162x228_600a3c7b9b.jpg)
Psychosocial Care
Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines | Published 2019 | Funded by DEBRA Norway
Download PDF![Supporting sexuality for people living with EB Spenden gutesiegel](/fileadmin/_processed_/e/b/csm_CPG_Sexuality_162x228_d27e003487.jpg)
Supporting Sexuality
Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines | Published 2021 | Funded by DEBRA Norway
Download PDF![Clinical Practice Guideline Wound Care Spenden gutesiegel](/fileadmin/_processed_/6/5/csm_CPG_Wound_Care_162x229_95bddead25.jpg)
Wound Care
Best Practice Guidelines: Skin and Wound Care in Epidermolysis Bullosa | Published 2017
Download PDF![Guía de buena práctica clínica: Cuidado de la piel y de las heridas Spenden gutesiegel](/fileadmin/_processed_/9/b/csm_CPG_Wound_Care_Spanish_162x229_8ea1f5eaf1.jpg)
Wound Care (Spanish)
Guía de buena práctica clínica: Cuidado de la piel y de las heridas en la Epidermólisis Bullosa | Published 2017
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![Clinical Practice Guideline Psychosocial Care Spenden gutesiegel](/fileadmin/_processed_/b/0/csm_CPG_Psychosocial_162x228_600a3c7b9b.jpg)
Psychosocial Care
Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines | Published 2019 | Funded by DEBRA Norway
Download PDF![Supporting sexuality for people living with EB Spenden gutesiegel](/fileadmin/_processed_/e/b/csm_CPG_Sexuality_162x228_d27e003487.jpg)
Supporting Sexuality
Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines | Published 2021 | Funded by DEBRA Norway
Download PDF![Clinical Practice Guideline Wound Care Spenden gutesiegel](/fileadmin/_processed_/6/5/csm_CPG_Wound_Care_162x229_95bddead25.jpg)
Wound Care
Best Practice Guidelines: Skin and Wound Care in Epidermolysis Bullosa | Published 2017
Download PDF![Guía de buena práctica clínica: Cuidado de la piel y de las heridas Spenden gutesiegel](/fileadmin/_processed_/9/b/csm_CPG_Wound_Care_Spanish_162x229_8ea1f5eaf1.jpg)
Wound Care (Spanish)
Guía de buena práctica clínica: Cuidado de la piel y de las heridas en la Epidermólisis Bullosa | Published 2017
Download PDFNo documents listed